In 2017, Texas passed House Bill 810, also known as “Charlie’s Law,” which expanded patient access to experimental stem cell interventions. This legislation requires that clinics conducting stem cell work report annually on patients and procedures, but what these reports would look like and how they would be used were left ambiguous. At this event, panelists discussed the critical need for a statewide registry to document, catalog and analyze stem cell interventions, which would have profound significance for promoting Texas as a worldwide center of stem cell and regenerative medicine innovation. Panelists also highlighted other successful registries that can be used as models and their influence on public health, as well as the infrastructure, resources and legislative actions required to create a registry.
This event was part of a series launched in 2016 dedicated to educating the public on the important intersection of science, medicine and policy in stem cell research at the state and national levels. The series was a collaboration between the Baker Institute Center for Health and Biosciences and the Texas Heart Institute, partially funded by a grant from the George and Mary Josephine Hamman Foundation.
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Agenda
8:00 a.m. - Presentation
Featured Speakers
Barry R. Davis, M.D., Ph.D.
Guy S. Parcel Chairman in Public Health, Professor of Biostatistics and Director, Coordinating Center for Clinical Trials, The University of Texas School of Public Health
Kirstin R.W. Matthews, Ph.D.
Fellow in Science and Technology Policy, Baker Institute
Keri Sprung
Director of Communications, and Program Manager, Center for Women’s Heart & Vascular Health, Texas Heart Institute
James T. Willerson, M.D.
President Emeritus, Texas Heart Institute
Sherif Zaafran, M.D.
President, Texas Medical Board